Simon, can you tell us a little about yourself?

Simon: Hi, I’m Simon. I’m 12 years old, I have cerebral palsy and I attend Sint-Jan secondary school.

What does cerebral palsy mean to you, and how does it affect your daily life?

Simon: Most of the time, it does not affect me very much. The main things are wearing my splints, going to physiotherapy and attending medical appointments. I have physiotherapy three times a week and regular check-ups, which often take up an entire day.

Are there things that require more effort for you than for other young people?

Simon: Fine motor skills, climbing stairs and walking or running can be more difficult. I also get tired more quickly.

What helps you overcome those challenges?

Simon: I am very competitive. When something is difficult, I still really want to be able to do it. That motivates me to keep trying.

What role do splints and therapy play in your life?

Simon: Honestly, they often feel like a burden.

For Simon, the splints, physiotherapy and medical follow-up are necessary parts of his routine, but they also require time and effort. His answer is an important reminder that assistive devices should not only provide the necessary support. They should also be as comfortable, practical and discreet as possible, helping young people participate in everyday life without making them feel defined by their condition.

You are part of the Belgian national CP football team. What does football mean to you?

Simon: Because I am very competitive, I really enjoy sports, but football is my favourite. I cannot really explain why. I am very happy to be part of the national CP team because everyone there has similar experiences, and everyone is very kind.

What achievement are you most proud of?

Simon: Surviving my first exams!

What would you like more people to understand about living with CP?

Simon: My CP is not always very visible, but my fine motor skills are affected. I still need to wear splints and attend physiotherapy, which takes up a lot of time.

How can others better support people with cerebral palsy?

Simon: When we can do something independently, treat us like anyone else. When something is more difficult for us, offer help.

What would you say to other children or young people with CP?

Simon: You can do more than you think, as long as you are willing to try.

If you could share one message on World Cerebral Palsy Day, what would it be?

Simon: Nobody chooses to have CP. Support the people who live with it.

Life with Cerebral Palsy: Simon’s Story of Determination and Inclusion

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